This annual conference is an opportunity for teens and adolescents between the ages 14-25, who have been diagnosed with MRKH, and their families to come together for education and support. 

Saturday, November 5^th @ 9:00AM EST – Saturday, November 5^th @ 6:00AM PST

Saturday, November 5^th @ 9:00AM EST – Saturday, November 5^th @ 7:00AM MDT

Saturday, November 5^th @ 9:00AM EST – Saturday, November 5^th @ 8:00AM CDT

Saturday, November 5^th @ 9:00AM EST – Saturday, November 5^th @ 1:00PM WET

Saturday, November 5^th @ 9:00AM EST – Saturday, November 5^th @ 3:00PM CET

Saturday, November 5^th @ 9:00AM EST – Saturday, November 5^th @ 4:00PM EET

Tickets are free, but pre-registration is required. Click here to  sign up.

17^th Annual MKRH Conference Schedule – November 5, 2022

** Subject to Change**

08:45-09:00   Logging in

09:00-09:10   Opening Remarks & Welcome – Emily Haffner BSN, RN, CPN

0910-09:45    Keynote: MRKH Presentation “General Reproductive Health” – Dr. Jessica Shim

09:45-10:20   Guest Speakers: “Journey with MRKH”

10:20-10:30   Bathroom/Snack Break

10:30-11:15   Discussion/Activity Groups:

1. 1. 1. 1. 1. Dilation Journey’s from Beginning to End
               • A co-led discussion geared towards patients who are interested in beginning/restarting dilation therapy for the creation of a vaginal canal.
               • Discussion will include the medical dilation process, recommendations for patients and parents about dilation, and also hearing from a guest speaker about her own journey and advice about when it is best to begin dilation
            2. Intimacy and Relationships
               • A co-led discussion following a presentation from one of our guest speaker/MRKH advocate on the broad definitions of sex, sexuality, and promoting individual sexual pleasure as well.
            3. History and Progress of Interventions for MRKH (Parent-only group)
               • A co-led discussion with a gynecologist provider and MRKH advocate/guest speaker who recently conceived through IVF and induced lactation to breast feed her own child
               • Provide information on the history of MRKH (history of diagnosis, progression of treatments)
               • Provide information on where we currently lie with treatments such as dilation, discussing fertility, IVF, uterine transplant, etc.

11:15-12:15   Break Out Groups

• • • • • Newly diagnosed and younger teens
        • Older Teens
        • Young Adults
        • Parent Group #1
        • Parent Group #2*
        • Siblings, friends, significant others

12:15-12:25   Panel Discussion with Faculty – Q&A

12:25-12:30   Closing

*Second group depending on attendance