MRKH Conference – October 19, 2019

MRKH Conference for Teens and Their Families

Please check back soon for the schedule of the 2019 MRKH Conference.

This annual conference is an opportunity for young women ages 14-25 who have been diagnosed with MRKH, and their families to come together for education and support. Our past conferences have been successful — thanks to all of our attendees and speakers! We welcome your suggestions for our upcoming 2019 conference!

 

We are hoping to have a live webcast of the conference available for individuals who are unable to attend the conference in person. If you would be interested in watching a live webcast, please email cywh@childrens.harvard.edu for more information.

For more information, please contact Phaedra Thomas, RN, BSN at 617-355-7712 or via email: phaedra.thomas@childrens.harvard.edu.

2019 MRKH Conference Details

Date: Saturday October 19, 2019

Cost to Attendees: $25 – individual | $50 – family

Beautiful You MRKH Foundation can offer support for travel funds. Download the grant application here.

Location: Boston Children’s Hospital is located at 300 Longwood Avenue Boston, MA, 02115. Enders Auditorium is to the right of the main entrance, at 320 Longwood Avenue.

Getting here by Public Transportation (subway and commuter rail)- http://www.childrenshospital.org/patient-resources/getting-here/public-transportation

Accommodations:

Beech Tree Inn (When making reservations at Beech Tree, please mention that you are attending a patient conference at Boston Children’s Hospital for the lowest rate)
Inn at Longwood Medical
Residence Inn in Boston Back Bay/Fenway

Attention Massachusetts Families: If you are planning to attend the conference and would like to host a young woman or family and provide transportation to the conference, please contact: Phaedra Thomas @ phaedra.thomas@childrens.harvard.edu

Saturday, October 19, 2019 Tentative Conference Schedule

MORNING

8:30-9:00              Registration

9:00-9:10              Opening Remarks

9:10-9:20              Welcome- Guest Speaker

9:20-10:45           MRKH Presentation- Dr. Marc Laufer

10:45-11:00         BREAK

11:00-11:45         Guest Speakers

LUNCH

11:45-12:30         Teen Lunch with Guest Speakers (included in registration)

11:45-12:30         Parents and Others (lunch on own)

AFTERNOON     

12:30- 2:00          Support Groups for Teens & Young Adults by Age

Younger teens and newly diagnosed teens

Older teens

Young adults

12:30-2:00           Support Groups for Parents & Others

For Dads Only

Moms of Young Teens

Moms of Older Teens

Others (siblings, other family members, significant others)

2:00-2:45              Workshops (Choose One)

“Art Workshop”  

“Moving with Sunni”   

2:45-3:00              BREAK

3:00-3:30              Dr. Amy Lossie, BYMRKH.org

3:30- 4:00            Panel Discussion and Q & A

4:00                        END