MRKH Conference for Teens and Their Families

Please check back soon for the schedule of the 2019 MRKH Conference.

This annual conference is an opportunity for young women ages 14-25 who have been diagnosed with MRKH, and their families to come together for education and support. Our past conferences have been successful — thanks to all of our attendees and speakers! We welcome your suggestions for our upcoming 2019 conference!

We are hoping to have a live webcast of the conference available for individuals who are unable to attend the conference in person. If you would be interested in watching a live webcast, please email cywh@childrens.harvard.edu for more information.

For more information, please contact Phaedra Thomas, RN, BSN at 617-355-7712 or via email: phaedra.thomas@childrens.harvard.edu.

2019 MRKH Conference Details

Date: Saturday October 19, 2019

Cost to Attendees: $25 – individual | $50 – family

Beautiful You MRKH Foundation can offer support for travel funds. Download the grant application here.

Location: Boston Children’s Hospital is located at 300 Longwood Avenue Boston, MA, 02115. Enders Auditorium is to the right of the main entrance, at 320 Longwood Avenue.

Getting here by Public Transportation (subway and commuter rail)- http://www.childrenshospital.org/patient-resources/getting-here/public-transportation

Accommodations:

Beech Tree Inn (When making reservations at Beech Tree, please mention that you are attending a patient conference at Boston Children’s Hospital for the lowest rate)
Inn at Longwood Medical
Residence Inn in Boston Back Bay/Fenway

Attention Massachusetts Families: If you are planning to attend the conference and would like to host a young woman or family and provide transportation to the conference, please contact: Phaedra Thomas @ phaedra.thomas@childrens.harvard.edu

Saturday, October 19, 2019 (Tentative) Conference Schedule

MORNING

8:30-9:00           Registration

 9:00-9:10           Opening Remarks

 9:10-9:30           Welcome- Dr. Susan Carroll

 9:30-10:15          MRKH Presentation- Dr. Marc Laufer

 10:15-10:30       BREAK

 10:30-11:30       Guest Speakers- Women share their MRKH journey

 11:30-12:00       Dr. Amy Lossie, BYMRKH

LUNCH

12:00-1:00         Teen Lunch with Guest Speakers (included in registration)

12:00-1:00         Parents and Others (lunch on own)

AFTERNOON

1:00- 2:00          Support Groups for Teens & Young Adults by Age

• Younger teens and newly diagnosed teens
• Older teens
• Young adults

1:00-2:00           Support Groups for Parents & Others

• For Dads Only
• Moms of Young Teens
• Moms of Older Teens
• Friends, siblings, partners and others

 ​

Workshops– Choose One

2:00-2:45

• “Options to Create a Vagina”- Dr. Marc Laufer
• “Art Project” – Katy and Laura
• “Moving with Sunni”  

2:45-3:00             BREAK

3:00-4:00             Uterine Transplant Panel (with the Transplant team, Brigham & Women ‘s Hospital & Lindsey, the first woman to receive a uterine transplant in the United States)

 4:00-4:30            Panel Discussion with Faculty- Q & A

 4:30                     Close