This annual conference is an opportunity for teens and adolescents between the ages 14-25, who have been diagnosed with MRKH, and their families to come together for education and support.
Saturday, November 5th @ 9:00AM EST – Saturday, November 5th @ 6:00AM PST
Saturday, November 5th @ 9:00AM EST – Saturday, November 5th @ 7:00AM MDT
Saturday, November 5th @ 9:00AM EST – Saturday, November 5th @ 8:00AM CDT
Saturday, November 5th @ 9:00AM EST – Saturday, November 5th @ 1:00PM WET
Saturday, November 5th @ 9:00AM EST – Saturday, November 5th @ 3:00PM CET
Saturday, November 5th @ 9:00AM EST – Saturday, November 5th @ 4:00PM EET
Tickets are free, but pre-registration is required. Click here to sign up.
17th Annual MKRH Conference Schedule – November 5, 2022
** Subject to Change**
08:45-09:00 Logging in
09:00-09:10 Opening Remarks & Welcome – Emily Haffner BSN, RN, CPN
0910-09:45 Keynote: MRKH Presentation “General Reproductive Health” – Dr. Jessica Shim
09:45-10:20 Guest Speakers: “Journey with MRKH”
10:20-10:30 Bathroom/Snack Break
10:30-11:15 Discussion/Activity Groups:
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- Dilation Journey’s from Beginning to End
- A co-led discussion geared towards patients who are interested in beginning/restarting dilation therapy for the creation of a vaginal canal.
- Discussion will include the medical dilation process, recommendations for patients and parents about dilation, and also hearing from a guest speaker about her own journey and advice about when it is best to begin dilation
- Intimacy and Relationships
- A co-led discussion following a presentation from one of our guest speaker/MRKH advocate on the broad definitions of sex, sexuality, and promoting individual sexual pleasure as well.
- History and Progress of Interventions for MRKH (Parent-only group)
- A co-led discussion with a gynecologist provider and MRKH advocate/guest speaker who recently conceived through IVF and induced lactation to breast feed her own child
- Provide information on the history of MRKH (history of diagnosis, progression of treatments)
- Provide information on where we currently lie with treatments such as dilation, discussing fertility, IVF, uterine transplant, etc.
- Dilation Journey’s from Beginning to End
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11:15-12:15 Break Out Groups
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- Newly diagnosed and younger teens
- Older Teens
- Young Adults
- Parent Group #1
- Parent Group #2*
- Siblings, friends, significant others
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12:15-12:25 Panel Discussion with Faculty – Q&A
12:25-12:30 Closing
*Second group depending on attendance