MRKH Conference – November 3, 2018

MRKH Conference for Teens and Their Families

Please check back soon for the schedule of the 2018 MRKH Conference.

This annual conference is an opportunity for young women ages 14-25 who have been diagnosed with MRKH, and their families to come together for education and support. Our past conferences have been successful — thanks to all of our attendees and speakers! We welcome your suggestions for our upcoming 2018 conference!


Save the date for our next MRKH Conference: November 3, 2018

We are hoping to have a live webcast of the conference available for individuals who are unable to attend the conference in person. If you would be interested in watching a live webcast, please email for more information.

For more information, please contact Phaedra Thomas, RN, BSN at 617-355-7712 or via email:

2017 MRKH Conference Details

Date: Saturday November 11, 2017

Cost to Attendees: $25 – individual | $50 – family

Location: Boston Children’s Hospital is located at 300 Longwood Avenue Boston, MA, 02115. Enders Auditorium is to the right of the main entrance, at 320 Longwood Avenue.

Accommodations: We have reserved a block of rooms at The Inn at Longwood Medical (342 Longwood Ave, 617-731-4700) for a discounted price. If you are reserving rooms at The Inn, mention the Children’s Hospital Center for Young Women’s Health event to receive the discounted rate.

Attention Massachusetts Families: If you are planning to attend the conference and would like to host a young woman or family and provide transportation to the conference, please contact: Phaedra Thomas @

Saturday, November 11, 2017 Conference Schedule:

Saturday Morning

8:30-9:00 Registration

9:00-9:15 Opening Remarks

9:15-9:45 Welcome–Ashley and Dani

9:45-10:45 MRKH Presentation–Dr. Marc Laufer

10:45-11:00 Break

11:00-12:30 Guest speakers–Stephanie, Claire, Sunni, Sarah

Saturday Afternoon

12:30-1:30 Teen lunch with guest speakers (pizza lunch included)

12:30-1:30 Parent/families/others lunch (on your own)

1:30-2:30 Support groups for parents and others

  • For Dads only
  • Moms of young teens
  • Moms of older teens
  • “Others” group (for significant others, siblings, grandparents, etc.)

1:30-2:30 Support groups for teens and young adults (by age)

  • Younger teens and newly-diagnosed teens
  • Older teens
  • Young adults

2:30-3:30 Presentation: “Options for Creating a Vagina” with Dr. Laufer or activity–“Stretching with Sunni”

All are welcome to attend either workshop

3:30-3:45 Break

3:45-4:00 Amy Lossie, PhD–BYMRKH, Survey Results

4:00-4:30 Panel Discussion and Q&A

4:30 End

6:00 (tentative) Evening social TBA (optional)