I was recently diagnosed with MRKH, but I wasn’t ready to seek help right away. Now I am ready to learn more about my diagnosis. Is there a website or physician registry that could help me locate a provider that specializes in MRKH?

MRKH butterfly in hands

Great question! Thank you for reaching out to us. MRKH (Mayer Rokitansky Kuster Hauser Syndrome) is a congenital (occurs during fetal development) problem that affects the female reproductive tract. Unfortunately, MRKH is considered a rare disorder; 1 in 5,000 females are born with MRKH. However, despite these challenges, there are some great resources available. A good place to start is through our website, where you can learn more about MRKH and opportunities we offer! We also recommend checking out Beautiful You MRKH, a wonderful resource that has provider recommendations and available support groups, not only in the United States, but around the world! We hope these resources help answer some of your questions.