MRKH:
A Guide for Parents and Guardians
 |
 Talking with Siblings |
| Accepting your Daughter's Diagnosis |
Commonly Asked Questions |
| Taking Care of Yourself |
MRKH Guide for Teens |
| Helping your Daughter |
MRKH Conference for Teens & Their Families Saturday, October 17, 2009 8:00 am-3:00 pm Children's Hospital Boston Click here for more info |
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Learning that your daughter has MRKH may bring up many questions and emotions for parents. It is normal to be worried about how your daughter is coping and it is important to be aware of your own reactions to this news. Discussing issues such as puberty, reproduction, and sexuality is often challenging for parents. When your daughter is diagnosed with vaginal agenesis, you may feel overwhelmed with your own concerns, your lack of knowledge about the condition and how to discuss it with your daughter, your family, and her primary health care provider or pediatrician. This information guide is intended to help you to understand MRKH syndrome, answer your concerns, and help you support your daughter. Commonly asked questions and concerns are included at the end of this guide.
What is MRKH?
MRKH is a congenital condition of the female reproductive system that affects approximately 1 out of every 5000 females. Girls diagnosed with MRKH have vaginal agenesis, which refers to an absent or incomplete vagina. The uterus is also very small or absent. It is important to understand that young women with this syndrome are genetic females. They have normal ovaries and will experience puberty without having periods. MRKH is a syndrome that may or may not be associated with renal (kidney), skeletal, and hearing problems.
Next: Accepting your Daughter's Diagnosis |
Updated: 6/19/2009
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